Parenting a Child with a Neurodevelopmental Disorder during the Early Stage of the COVID-19 Pandemic: Quantitative and Qualitative Cross-Cultural Findings

  1. Mazzoni, Noemi 1
  2. Bentenuto, Arianna 1
  3. Filosofi, Fabio 1
  4. Tardivo, Angela 12
  5. Strathearn, Lane 333
  6. Zarei, Kasra 33
  7. De Falco, Simona 1
  8. Venuti, Paola 1
  9. Iandolo, Giuseppe 24
  10. Giannotti, Michele 1
  1. 1 University of Trento
    info

    University of Trento

    Trento, Italia

    ROR https://ror.org/05trd4x28

  2. 2 Observation and Functional Diagnosis Division, PSISE Clinical and Developmental Psychological Service
  3. 3 University of Iowa
    info

    University of Iowa

    Iowa City, Estados Unidos

    ROR https://ror.org/036jqmy94

  4. 4 Universidad Europea de Madrid
    info

    Universidad Europea de Madrid

    Madrid, España

    ROR https://ror.org/04dp46240

Revista:
International Journal of Environmental Research and Public Health

ISSN: 1660-4601

Año de publicación: 2022

Volumen: 20

Número: 1

Páginas: 499

Tipo: Artículo

DOI: 10.3390/IJERPH20010499 GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: International Journal of Environmental Research and Public Health

Resumen

first_pagesettingsOrder Article ReprintsOpen AccessArticleParenting a Child with a Neurodevelopmental Disorder during the Early Stage of the COVID-19 Pandemic: Quantitative and Qualitative Cross-Cultural Findingsby Noemi Mazzoni 1,*ORCID,Arianna Bentenuto 1,Fabio Filosofi 1ORCID,Angela Tardivo 1,2ORCID,Lane Strathearn 3,4,5ORCID,Kasra Zarei 3,4ORCID,Simona De Falco 1,Paola Venuti 1ORCID,Giuseppe Iandolo 2,6ORCID andMichele Giannotti 1ORCID1Laboratory of Observation, Diagnosis and Educational (ODFLAB), Department of Psychology and Cognitive Science, University of Trento, 38068 Rovereto, Trento, Italy2Observation and Functional Diagnosis Division, PSISE Clinical and Developmental Psychological Service, Calle Albendiego 7, 28029 Madrid, Spain3Department of Pediatrics, Carver College of Medicine, University of Iowa, Iowa City, IA 52242, USA4Center for Disabilities and Development, University of Iowa Stead Family Children’s Hospital, Iowa City, IA 52242, USA5Hawkeye Intellectual and Developmental Disabilities Research Center (Hawk-IDDRC), University of Iowa, Iowa City, IA 52242, USA6Department of Psychology, School of Biomedical Sciences, European University of Madrid, Calle Tajo S/N, (Urb. El Bosque), Villaviciosa de Odón (Madrid), 28670 Madrid, Spain*Author to whom correspondence should be addressed.Int. J. Environ. Res. Public Health 2023, 20(1), 499; https://doi.org/10.3390/ijerph20010499Received: 1 November 2022 / Revised: 16 December 2022 / Accepted: 21 December 2022 / Published: 28 December 2022(This article belongs to the Special Issue The Short- and Long-Term Psychological Impact of COVID-19 Outbreak in Individuals with Autism and Typically Developing)Download Review Reports Versions NotesAbstractResearch during the COVID-19 pandemic has shown a strong relationship between child symptoms, parental stress, and mental health challenges. The pandemic has changed family routines, worsening child symptomatology and parental burden. The aim of this study was to investigate how the magnitude of the perceived changes in child externalizing behavior, parental stress, and discontinuity of therapy—from before to during the COVID-19 pandemic—affected parental mental health during the pandemic. Moreover, we sought to compare these aspects cross-culturally between European countries and the USA. To these purposes, we asked Italian, Spanish, and U.S. parents of children with neurodevelopmental disabilities (NDD) to complete an online survey. Quantitative results showed that increased parental stress may have contributed to a worsening in parental psychological distress, regardless of culture. Moreover, they suggested an indirect effect of child externalizing behaviors on parents’ psychological distress via parental stress. Qualitative analyses highlighted that the lack, or discontinuity, of therapeutic activities may have been one of the key contributors to parenting burden during the COVID-19 pandemic. Finally, qualitative results highlighted resilience factors that could have decreased the risk of psychological problems during the pandemic, such as a strong sense of parental efficacy and the ability to adapt to changing family dynamics.

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